
STIFF PERSON SYNDROME
A one in a million disease!
STIFF PERSON SYNDROME
A one in a million disease!
Stiff Person Syndrome is a very rare, autoimmune disease that affects 1 out of every 1 million people. Unfortunately, there's not a lot of information about it. This website, in conjunction with Facebook and Instagram, is designed to provide information as it comes in, which is at a trickle, not a deluge.
I'll be sharing some information about this disease and what I learn as I progress through. It's interesting, albeit a little painful. I will also have some video blogs for your enjoyment. Hopefully none of them will show me falling down and hitting my head again :(
3 days after my first IVIG treatment and I am feeling good. Grabbing a walk on the beautiful Sourdough trail.
Also, a great tip for Montana is never plant flowers prior to Mother's Day
Apparently I am One in a Million
Carry your dogs leash - always
Unknown tips regarding walking sticks.
Sometimes success is just putting one foot in front of the other.